A NIGHT IN FLORENCE
Happy Holidays from NF Mid-Atlantic 2012
Help With Your Obsessive Compulsive Disorder
A Recent webinar of NF Mid-Atlantic: Help With Your Obsessive Compulsive Disorder presented by Gerry Fisher, M.S.W. (We apologize for the echo at the beginning and end)
Genetic Testing Through a Lifetime
This essential webinar discusses Genetic Testing, presented by Dr. Ricki Lewis.
Bagpipes Included
Here's some of Team NF 2012 headed to the Start Line
The Basics of Neurofibromatosis Webinar
Originally presented by Dr. Maria Acosta on May 2, 2012
Listen to Executive Functioning: How to Stay Organized in a Confusing World
"Executive Functioning: How To Stay Organized In A Confusing World"
Join us for a free webinar: 4/18/12 at 7:00 pm (Eastern) Register
"Thriving With NF" Book Club: 3/28/12 JOIN US!
Kristi Hopkins gives you a preview of our free on-line book club!
Ed Port--post surgery
Ed Port of Ohio recently underwent the first of several surgeries to remove a large facial tumor. Ed has NF2.
How to Register for the Support Forums
Tutorial to instruct NF ers on how to Register for the NF Mid-Atlantic Support Forums
JOIN THE TEAM!! Email: teamnf@nfmidatlantic.org We'll do the rest
Watch last year's team! Join this year's--June 10, 2012 teamnf@nfmidatlantic.org
"The Gift"
Paco Rodriguez died tragically on November 22, 2009. His "gift" was a vital liver that allows NF-Mid-Atlantic's Meghan Kingsley to live on while facing her battles with NF2.
Don't miss this documentary. E-60 on ESPN, 4/19/11 at 7:00 p.m. (est) and throughout the week.
Dr. Stewart: 2010 "Make A Difference" Award Winner
Congratulations to Dr. Douglas Stewart on receiving the 2010 "Make A Difference" Award.
Dr. Stewart is a geneticist working on NF 1. Listen hear as he discusses his work.
Amanda Hunt Franklin, Esq. Discusses Giving to NF Mid-Atlantic
Attorney Amanda Hunt Franklin spoke recently to Barbra about innovative ways that supporters of the work of NF Mid-Atlantic can give to the agency.
Ms. Franklin is an attorney with the Law Offices of Aryeh Guttenberg. Their website is www.guttenberglaw.com
Camp New Friends 2010--WELCOME
Camp New Friends 2010--interview with Dickson
Camp New Friends 2010--interview with Xavier
Camp New Friends 2010--interview with Lizzie
Camp New Friends 2010--interview with Elizabeth
It's almost time for camp again! Time to review some videos from last year.
The "I AM...NF" Project ©
NF is widespread. Join us in our project: "I AM...NF". Send us your own version!
Mission Media on Creating a New Identity for NF MidAtlantic
Top 10 Tips for Success in the Special Education Process
Practical, down-to-earth tips on meeting your child’s Special Education needs.Become more aware of your child’s legal rights and where to find assistance. Topics include the Individuals with Disabilities Education Act (IDEA) and the Americans with Disability Act (ADA). Attorney James Silver offers instruction on the process of obtaining an IEP and assisting your child with a disability.
Early Signs of Learning and Attention Vulnerability in NF-1
Watch Here:
Dr. Bonnie Klein-Tasman has been studying the cognitive and attention difficulties in young children with NF l. She will describe the cognitive and learning difficulties that has been faced for individuals with NF1 in the later childhood, adolescent, and adult years are also evident earlier in childhood.
Meet David and Learn about NF Netherlands!
NF Mid-Atlantic has recently partnered with WATISNF the Dutch NF Awareness group. Watch an interview here with its founder David Oosterloo and NF Mid-Atlantic Executive Director, Barbra Levin. Contact David on our site at: AskDavid@nfmidatlantic.org
Managing Pain in Neurofibromatosis
Managing Pain from Andrew T. Putnam, M.D.
How to View our Webinars if you are Deaf or Hearing Impaired
If you are Deaf or Hearing Impaired because of NF2 or another condition, this short video shows you steps we are taking to help you view our on-line learning.
Neuropsychological Functioning in Neurofibromatosis
Watch the complete webinar. Download the slides. You can visit Dr. Couvadelli's website at: http://neuro-behavioral.ning.com/
Los fundamentos de la Neurofibromatosis (IN SPANISH)
Este seminario explica en términos simples la compleja condición conocida como neurofibromatosis. "NF" es extremadamente complicado. Se presenta en muchas formas y es a menudo sin diagnosticar o mal diagnosticados. Esta "Información básica" Por supuesto que desmitificar la enfermedad.
Presentado por la Dra. Maria T. Acosta el 16 de mayo de 2012. Patrocinado por NF Mid-Atlantic.
Stress and the CareGiver
Life Coach Gerry Fisher, MSW discusses one method for dealing with Care Giver stress
